Jackson had an appointment with the neurosurgeon yesterday morning. And guess what??? NO MORE HELMET!!!!!!!! WOOHOO!!!!!!!! Jimmy said he's going to bring his dremel tool home, trim it and make him keep wearing it. He says, "I like the protection! Have you seen him walk into walls? He's a true P-----! (last name here)" LOL I know Jackson is glad to be rid of that thing. LOL We go back in May for a CT scan and a follow up with the neurosurgeon. But he said he's doing excellent.
There was another baby there that just broke my heart, yet made me so glad Jackson did so well. This other baby was born with other conditions and has already had about 9 surgeries. Apparently his parents both carry this rare gene that was passed onto their baby. This baby also has craniosynostosis. His is so severe that his head is flat in the back and front. Poor little guy was just smiling away. He had a trachea tube so he couldn't babble, but I could see him smile. :) He has so many more surgeries coming up. He's 4 days younger than Jackson. Please keep him in your thoughts and prayers.